Well, Dave and Katie did not hear good news today in regards to Samantha. Here she was on Day 6 of doing well and not having any heart issues and this morning she suffered a setback. Apparently when the nurses were attending to her (drawing blood, I think), she went into desat, meaning her heart rate dropped and her oxygen level plummeted such that she turned a little blue. This required intervention on the part of the nurses and she was given oxygen and stimulated to bring her heart rate back up to normal.
Unfortunately, this means Day 6 now becomes Day 1 and Sam will be in the hospital for another week, hopefully to be released next Monday. Needless to say, Katie was greatly frustrated by this news and when I stopped by the hospital today to visit with her, my heart just broke to see her so down and upset. I told her that it was a good thing this episode happened at the hospital instead of at home (trying to cheer her and make her feel a little better).
It’s not the news or occurence anyone wanted to happen but there it is. Hopefully this added time in the hospital will provide the opportunity to discover what is exactly happening to Samantha and why she keeps having these episodes. Besides all of that, her bilirubin is still up (but coming down slowly) so she has to remain under those awful lamps for another day or two. This only adds to Katie’s struggle as she can only hold her when it’s feeding time and just has to sit blithely by (note the added sarcasm) to pat her little legs or hold her hand. This day after day of just sitting there staring at her is driving Dave and Katie mad and it wouldn’t be so bad if she could at least hold her more (if ANY of us could hold her more!).
Does anybody know or have any suggestions as to why Sam’s heart has these episodes from time to time? They did an EKG today to detect any other concerns but nothing stood out as problematic or issue prone. This is the great frustrating mystery: why does this keep happening and how can we stop it from occuring?
Despite all the hubbub of activity she has experienced today, she still is just beautiful to look at. Again, most of the time you get to see her face is when Katie is feeding her and I was happy I got to be there a bit today to see those dark blue eyes of hers. During a break in feeding, Katie was holding her and talking softly about what a beautiful girl she was and she just stared wide-eyed at Katie, drinking in everything her momma was saying. There was a poignant fascination that you only get from a child. What can we say? She’s a fantastically wonderful and completely “beauty full” child.