*brought over from my “other blog”
I spent a few hours up at Primary’s with Katie yesterday to give her company as well as tend to my beautiful little niece. The hardest part right now for Katie is the fact that Sammy’s bilirubin hasn’t yet gone down, so she remains under the lights looking more and more like an Oompa Loompa. Her levels rose Thursday and were going down a little bit yesterday (she was at 14). So essentially, the only time she can be held is when Katie feeds her. We’re hoping that by Sunday she is out from under her tanning bed and ready to be cuddled by a stream of people.
Also, she had a big test (a head ultrasound) and I arrived just in time to hear the results. The purpose of the ultrasound was to check the progress of the blood that existed in her ventricles, to see if it’s receding or causing anymore grief. We already knew that the swelling in her head had gone down so that was a step in the right direction. Sam’s nurse practitioner said her ventricles were still abnormally large from the swelling, blood still existed but that it was “resolving” – looking like debris in her brain, and she said it showed signs of mild ventricular dilation. This was all what they were expecting to see so it wasn’t anything that surprised or concerned them. But she will need another follow up head ultrasound next Friday to see if that “debris” is clearing.
She looks amazing, though, with tiny little chicken legs, itty bitty feet, and her daddy’s toes (sorry kid). The other thing that is funny is she does make several faces that look like Dave. She crinkles up her eyes the same way he does and when she is sleeping, she sometimes hangs her mouth open in the same manner as he does (according to Katie). But it’s all so endearing and precious.
Her heart rate is doing better – she hasn’t had any episodes within the last couple of days that have required intervening so if all goes well, she will be discharged Tuesday. That will be the 7th day in a row that she will have had no problems which is required before any baby can be discharged from the NICU. So we’re all praying and crossing our fingers that she keeps up the good progress so that she can head on home.